A Year Ago on My Life with Fibro

Topics: A Year Ago

AYA


Being Over­whelmed with (not by) Fibromyal­gia: This seems to be a trend.  Not just with this blog… but with my life since March.  I begin a project with an idea, I plan it out (an extra-essential step for fibro­folks), and I exe­cute.  I do not, how­ever, per­sist.  I put things on hold.  I rest up.  Per­haps I start some­thing new.  Finally, I revisit the project or task when my brain regains its capac­ity for said project.  This rou­tine has an obvi­ous, and poten­tially ruinous, flaw.

Being Over­whelmed by (not with) Fibromyal­gia: I plan sim­ply to feel pre­pared.  I do not plan to know what I will be doing when and where.  Fibromyal­gia makes the lat­ter type of plan­ning nearly impos­si­ble.  And for that, today I hate it (fibromyal­gia, not the afore­men­tioned fact).  I am over­whelmed and feel­ing out of con­trol of my life…

My Fibromyal­gia Treat­ment Plan v2.1.1: Dr. Delilah became my chi­ro­prac­tor through an odd string of events I can assuredly say was not a coin­ci­dence.  Since my first visit I have not only regained mobil­ity and increased my men­tal clar­ity, I have come to pay more atten­tion to my body and the things it tries to tell me.  (Does any­one else feel like their fibromyal­gia makes them keenly aware of their strengths by mak­ing them face their weaknesses?)


Existing Comments

    Comment by Angie Carter on July 9, 2009 @ 12:37 pm

    Hey there K8,

    I have had Fibromyal­gia for 12 years and just in the last 2 years I have man­aged to stay rel­a­tivly pain free. I’m not really sure how I did it.
    But I’m jump­ing ahead of myself here. When I was first diag­nosed with Fibromyal­gia and all the good­ies that go along with it, like IBS, Chronic Fatigue and on and on, it nearly ruined my mar­riage. We had only been mar­ried sev­eral years and was use to just going on small trips at a whim, that came to an abrupt halt. For 10 years I was in so much pain that I would lay in the mid­dle of the liv­in­groom floor and cry. Then I got mad and started edu­cat­ing myself about Fibromyal­gia and it’s good­ies. I kept a pain diary with charts and the such. I kept track of what I ate to learn if food trig­gered my flares, it did. Along with the pain diary I also kept a jour­nal of every­thing that went on in my life to find out what my stres­sors were. That was a shocker, because it was my hus­band who was stress­ing me out and caus­ing most of my flares.
    I also had those who knew abso­lutly noth­ing about Fibromyal­gia telling my hus­band that there was noth­ing wrong with me, that I just didn’t want him to go any­where and have a good time. He would explain to them that my pain was very real and that I just didn’t want any­one to know I was in pain. I told him that I have had a lot of time to per­fect that.
    Then the next thing I did do was to get a new doc­tor. My new doc­tor is a spe­cial­ist in Pain Man­age­ment and that really helps. I also changed to a dif­fer­ent doc­tor for the Fibro­may­al­gia who is an internist but spe­cial­izes in Fibro­may­al­gia and Arthri­tis. He had told me that he has found that most of his pai­tients also have HepC and that after treat­ing his patients for that the Fibromyal­gia pain would sub­side a lot. That wasn’t the case with me because I had HepC and had already gone through the treat­ments.
    I think for me, I finally learned my trig­gers. Mine are sugar, stress, and the weather. Sugar for me is like posion, it makes me mean and lit­er­ally sick. I end up with diarea and throw­ing up not to men­tion my pain lev­els will go through the ceil­ing and it takes me a month to flush it out of my sys­tem.
    I take a lot of sup­ple­ments along with Tra­madol which is the only thing that cuts the pain and helps me sleep. Also my doc­tor per­scribed Amitri­pa­line to help me stay asleep. I take it two hours before I want to go to bed and then I take the rest of my meds and sleep like a baby.
    I still have flares that last about a month and the pain does seem to be more entense each time but the flares are fewer and they seem to be far­ther apart.
    My web­site is ded­i­cated to Fibromyal­gia and edu­cat­ing peo­ple who have it and those who don’t but just want to learn more about it. I also have an e-book that I wrote on my site. Give it a look. There is infor­ma­tion on the site that I didn’t even know. New laws are being past to help peo­ple who have chronic pain.

Make a comment or ask a question:

Comment Etiquette: If you have something to add, or can answer any of my questions, please do. If you are immature, unkind, or selling metaphoric snake oil, your comments will be short-lived. And remember, I want to get to know you, so use YOUR NAME or initials, not your company or blog name. Be proud of what you have to say! I look forward to your contributions.

(required)

(required)