My Life with Fibro

Kate Update: My Life with(out) Fibro?

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Since getting treated at Mayo in January, I’ve noticed a dramatic improvement in my health and a nearly-complete cessation of my fibromyalgia symptoms.  Dozens of days have found me, here, staring at my beloved blog wanting to spill my heart.  But I felt like a traitor.  I felt like you’d think I couldn’t relate.  I felt like maybe I shouldn’t stray from discussing My Life with Fibro.  And since my life seemed to be moving on, largely without fibromyalgia, I was left with little to say.

But I’ve come to my senses. Inspired by loved blogs, loved books, and loved ones, I’ve changed my mind.  

And here I am.  

I miss you.  I miss this site.  I miss learning, growing, and fighting fibromyalgia with you.

Since I’ve been gone a few things have changed…

Big Change #1
Big Change #1
Big Change #2
Big Change #2

Look for more updates in the coming days…

5 responses to “Kate Update: My Life with(out) Fibro?”

  1. Rochelle

    Wow, that is sooo great that you are doing so much better. I am so happy for you!! I am really amazed too. That is so awesome.

    Hope you keep up with the blog nonetheless. I am very intrigued to hear what life is like on the other side of this thing!

    Reply
  2. Tami Stackelhouse

    Hey Kate! YAY!! {BIG HUG}

    I know *exactly* what you mean! I’ve also found life beyond fibro.

    I’ll always say I have fibromyalgia, because I know that if I don’t take care of myself, it’s lurking there to catch me! However, for the last many months, I’ve been able to live (mostly) as if I don’t have fibro. In fact, I’m even starting to come off of my medications, with my doctor’s help, of course. (3.5 meds down so far!)

    For me, my radical change came about when my doctor put me on a nutritional program to help me lose weight. Sure, it was cool to lose 50#, but I never expected to discover I was gluten-intolerant, had Hashimoto’s, adrenal fatigue, or a ton of other stuff we discovered when I got off of my typical American diet! And YEAH, I REALLY never expected my fibro to nearly vanish.

    It’s a hard thing to carry hope inside when there are so many around without hope. Fibro is especially difficult because what works for you or for me might not work for the gal next to us. There is no specific “cure” we can share.

    At the same time, just speaking for myself here, I have a burning passion to share the lessons I’ve learned, the program that helped me, and the hope that I have. If what I’ve experienced can help even one other fibro-chick who is tired of sitting on the sidelines of her life, being held prisoner in her own body, then it’s worth it. If I can share my hope with her and help her find freedom, if I can help her live the life she’s dreaming of, then everything I went through, all my pain & suffering, was worth it.

    Reply
  3. Amy

    So what treatments did you get?

    Reply
  4. Paulette

    I would like to know if you or anyone that you know with this condition, has ever use Savella. I’ve just been told that I have this condition and started taking the med. Sevella. If anhyone has taken Savella, has this made an improvement in your life???????

    Reply
  5. Wendy Burnett

    Kate –

    Welcome back . . . We need you even more now, because your improvement gives us all hope that it really CAN happen for us too, and that’s a rare commodity in this community. We spend so much time listening to doctors saying “there’s no cure, only symptom management” and refusing to send us to someone who might actually help, that it’s hard to hope.

    Reply

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