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Category: I Read

In the News: Chronic Fatigue Likely Not Linked to Virus

It’s a sick day here in my house, so I’ve been easing into my day rather slowly.  You know how it goes… a few minutes on Facebook, a couple turns on Hanging with Friends, a bit of news, and Twitter, of course.  Nothing unusual, I know, but check out what I found in a tweet by the Deseret News out of Salt Lake City.

Research casts doubt on link between chronic fatigue, virus | Deseret News

I’d say I’ve always been a skeptical about the seemingly-simply virus explanation, but truth-be-told, I’m skeptical about most  explanations I’ve been given.  While I’d love to be able to simply explain my chronic health issues to family members and friends, I have yet to use any one explanation… I usually list three or four theories I’ve heard over the years.  And, frankly, I am likely far too proud to subscribe to one theory only to be told years later I’d been so set on said theory I missed the truth.  Is it just me?

Now, this is likely naive of me, but I can’t get over the fact that 17 studies have knocked down the theory.  Is this as high as it seems to me?  Maybe we can move on to researching a new theory, instead of just debunking old ones?  Based on the incredible experiences I’ve had over the last two years, I imagine the medical world could accomplish a lot in 17 separate studies.

Here’s something you may not know about me… while I was in college I participated in a clinical study relating to fibromyalgia, chronic pain, and pain tolerance.  It felt like something small I could do to help further our cause toward understanding, and hopefully a fix.  (I’d say cure, but the connotation seems so heroic that I feel like maybe it should be reserved for cancer, AIDS, etc.)

Anyway, you should read through this article, as well as those to which it links.  Let me know what you think about the road to uncovering the why behind our health issues.  And, let’s hear your wild ideas about what causes chronic fatigue (or chronic pain).

I Read: Stepcase Lifehack or Fibromyalgia and (Chronic) Pain and Posture

I am a regular reader of Stepcase Lifehack.  I appreciate the variety of ideas they discuss and often enjoy attempting to heed their advice.  Although the content usually has little to do with My Life with Fibro, last Tuesday they featured an article of particular interest to me by fitness coach, Jamie Nischan.

Nischan’s article closely echoes the advice I received during one of my recent trips to my chiropractor, Dr. Delilah.  He highlights body-friendly postures for driving, working, and sleeping and does a good job reminding you that the little things do, indeed, matter.

Before I left on vacation, Dr. Delilah strongly recommended I pay close attention to my posture.  She reminded me of the power seemingly small habits have to create muscle tension and pain.  She also reminded me how simple it can be to develop good habits and counteract and/or erase bad habits.

My sleep posture seems in line with the advice of both my chiropractor, and Jamie.  But my posture behind the wheel and at my desk need serious improvement.  In fact, my chiropractor believes my recent severe back pain can be lessened as I grow more aware of, and improve my driving posture.

Please give Nischan’s article a read, and let me know what you think.  And remember, don’t get overwhelmed.

I’m pretty sure being aware of your posture is the bulk of the battle.

I look forward to your feedback.

Fibromyalgia and Feeling like the Incredible Hulk

I don’t really care how you feel about Tim Ferriss. Or, more specifically, I am absolutely disinterested in how you feel about The 4-Hour Work Week. This post is not about that book.  This post is about a wonderful blog post I recommend each of you read/view.  I find Tim Ferriss to be a fascinating thinker.  His knack for deconstructing things works well for my brain and the processes I use to understand, learn, and remember.  This post (specifically the first video) is no exception…

Read it.  It will motivate you.  And help you realize that despite our fears, our health struggles, our oddities… we can learn, achieve, and improve.

Happy reading fibrofolks.  I am so proud of us!

I Read: The Fibromyalgia Research Blog

As I’ve mentioned in previous posts, I was diagnosed with fibromyalgia in 1998… I was 14. After I was diagnosed my parents and I read a variety of books, magazines, and articles as we researched FMS. Like most fibrofolks, we came across a wide variety of ideas for alleviating pain, curing fibromyalgia, and the like. Some seemed a bit ridiculous while we deemed others worth a shot. Over time we found a routine that worked for me and I was able to go into a bit of remission. With that remission I relaxed in my pursuit of learning as I began to take feeling well for granted.

Last year I found The Fibromyalgia Research Blog and have since enjoyed reading ByTheBay’s posts regularly. I recommend the blog to those with fibromyalgia as well as those close to fibrofolks. The blog discusses research and studies relating to fibromyalgia and chronic fatigue as well as various options for treatment and/or pain management. It is often the case that a post discusses a treatment option I have found helpful (like aquatic exercise) or explains and supports an observation I have made about fibro (extreme sensitivity to noise).

Since this latest flare-up began in early March I have begun the habit of additional reading and research about fibromyalgia. As I find interesting information I will be sure to bring it up in an “I Read:” post.