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Category: My Series

A Fibrofolk in Need


This morning I received the following e-mail regarding my post on May 13.  I was touched by the honesty and wanted to share this with our readers.  If you have any advice or tips for this sweet fibrofolk please comment and I will be sure the reader gets your advice.

…As all of you know, many people just don’t understand this condition.

I was diagnosed with A-typical Fibro and MF back in Dec.  however, my current physician though not a specialist, thinks my condition is more than Fibro.  However, without having an income or medical insurance I cannot see a Neurologist to verify what exactly this is.

I really don’t know how you all deal with this, I guess some people are more fortunate than others and have a support team.  I’m at a point that I can’t bear to tell my family any more of the pain and suffering I deal with daily.  Unlike you, I do have to suck it up and pretend I’m doing ok.  I’ve already lost all of my friends I used to work with because none of them understand, they think it’s all in my head.

Some days, I’m just tired of the constant battle.  But I try to find something to enjoy within each day.  Does anyone else ever feel like curling into a ball and just hiding from the world?

Well it’s time to feed my cats and take another round  of meds.  Maybe today I will even try to go for a walk in the woods.  Sorry to put a damper on every one, I hope and pray that all that read this have a wonderful, happy and easy day.  Thanks for listening.

I feel strongly that as a community it is important for us to come together in support of each other.  With very little known about fibromyalgia what we know is priceless.  We need to make sure we share our knowledge.

Raise Awareness.  Raise Morale. bumper sticker

Thank you for your continued support and involvement.  And as always, I pray we may all find lessons and blessings in our fight with fibromyalgia.

P.S. To the dear reader who sent the aforementioned message:  I will e-mail you my personal response.  Later today I will write another post about the first few things I did following my diagnosis.  I will again call on readers to share their advice.  Finally, I will write a post tomorrow to discuss health care options for fibrofolks.

Fibromyalgia and Dr. Peter D’Adamo


I, like my mother, am a strong believer that when an idea comes to me through multiple sources I ought to pay attention.  For example, since this flare-up began, multiple people have suggested I try following the advice of Dr. Peter D’Adamo.  Since the suggestion came through quite a few folks, I took it to be a wise one.

Eat Right 4 Your Type

image from BN.com

And per their advice I read Eat Right 4 Your Type by Dr. Peter D’Adamo.  To be honest, this book left me feeling a bit… hungry.  And maybe hopelessly lost.  So I purchased Cook Right 4 Your Type and this whole theory seemed more appealing and doable.  I highly recommend both books.  And, I confess, D’Adamo’s theory sure seems to make sense.

Cook Right 4 Your Type

image from Wal-Mart.com

Over the next few weeks I will gradually implement his advice for folks with my blood type.  Each day I will introduce an attribute of the blood type diet and discuss how I will implement the attribute in my life.  Based on what I have read and heard this will be a challenging process but I am willing to do whatever I can to alleviate my chronic conditions, namely my fibromyalgia.

Have any of y’all tried this diet?  Has it helped any of your chronic conditions?

A Fibromylagia Diagnosis and My Gratitude for Mine


This isn’t the post I promised to write today. I’ve been working on that one, but this is stuck at the tip of my tongue, so here it is…

A few weeks ago one of Daniel’s coworkers was diagnosed with Lupus. When he told me my heart ached for her. Although I have not had first-hand experience with Lupus, I have seen close family friends struggle with Lupus in their family. While living in Idaho one of our dear family friends lost a sibling to Lupus; seeing her struggle opened my eyes to just how brutal autoimmune diseases can be. (For a while my doctors thought I had Lupus. Luckily that diagnosis was eventually ruled out.)

Today the coworker of Daniel’s told him she was also diagnosed with fibromyalgia and chronic fatigue syndrome. Again my heart aches for her. Although neither diagnosis is as severe as Lupus, my heart aches a bit more now, than before, because I understand just what this means for her.

  • I hope her doctors did all they could to make sure this is the correct diagnosis. (It seems that many people decide, or are told, they have fibromyalgia simply because no other diagnosis seems to fit. And then, the common fibro treatments do not help them and they continue to struggle. I wouldn’t wish that on anyone.)
  • I pray she is able to find a routine that works, a routine that she can stick with as she works toward recovery, a routine that challenges her to push her limits but allows her a chance to rest and recover when she should.
  • I know a positive attitude will be her biggest ally. It is incredible how far a smile, optimism, and patience can get you. My heart is sad to see how many fibrofolks struggle to see the blessings that can come from struggling with chronic illness. (Crazy? No. Stick with me.) I am serious.
    • Because of my fight with fibromyalgia I know who I am and what I am capable of.
    • I know I can buck up and tough through pain.
    • I know when I am with my parents, or Daniel, or the Deschamps’, or the Grimm’s I can crash… I don’t need to pretend I feel no pain. They will never think less of me.
    • I know Daniel thinks I am the toughest woman alive, despite seeing me at my weakest (and having to carry me to bed on the nights when I just can’t do it).
    • I know my parents could not be more proud of me even though there are some things I just cannot do (And I know they grow more proud everyday).
    • I know my family and friends would do anything in their power to help me. And I know they know sometimes helping me may not always look like help. Sometimes helping me is challenging me, and pushing me to do just a little more than I think I can.
    • I know who loves and cares about me.
    • I know there are countless good people in this world who have big and sweet hearts.
    • I know that my Heavenly Father loves me and will continue to help me grow through, and learn from, this fight with fibromyalgia.
    • I know some doctors truly love their patients and would do anything within reason to comfort their patients.
    • I know that there are a lifetime lessons I have yet to learn.

Goodnight.

I suggest we all continue to strive to learn all we can from our fights with fibromyalgia, or Lupus, or whatever our personal battles may be. I bet doing so will make our lives more more fulfilling and therefore, more fun.

What do you think?

I Read: The Fibromyalgia Research Blog


As I’ve mentioned in previous posts, I was diagnosed with fibromyalgia in 1998… I was 14. After I was diagnosed my parents and I read a variety of books, magazines, and articles as we researched FMS. Like most fibrofolks, we came across a wide variety of ideas for alleviating pain, curing fibromyalgia, and the like. Some seemed a bit ridiculous while we deemed others worth a shot. Over time we found a routine that worked for me and I was able to go into a bit of remission. With that remission I relaxed in my pursuit of learning as I began to take feeling well for granted.

Last year I found The Fibromyalgia Research Blog and have since enjoyed reading ByTheBay’s posts regularly. I recommend the blog to those with fibromyalgia as well as those close to fibrofolks. The blog discusses research and studies relating to fibromyalgia and chronic fatigue as well as various options for treatment and/or pain management. It is often the case that a post discusses a treatment option I have found helpful (like aquatic exercise) or explains and supports an observation I have made about fibro (extreme sensitivity to noise).

Since this latest flare-up began in early March I have begun the habit of additional reading and research about fibromyalgia. As I find interesting information I will be sure to bring it up in an “I Read:” post.

Fibromyalgia and Timothy Ferriss


After years without a severe flare, I had forgotten how bad things could get. Now, I remember and I am ready for a change…

The first few years after I was diagnosed with fibromyalgia were rough. But after settling into a routine and helping teachers and friends understand how to help me succeed with FMS I eventually began to step out of the constant fibro flare. By the time I went to college I had my FMS under control. Occasionally a late night or miserable weather would throw me off but, after some solid rest and wise decision making, I would feel better.

At the beginning of the month I had an assignment due and I did what it took to get it done. Since then my body has done all in it’s power to remind me I cannot afford to put work, or much else, before my health. I haven’t been to work for a normal day in over two weeks. I work from home as much as I can but my brain can’t seem to think in numbers. The fibro fog tries to make its way into my life but I’m fighting.

I tried to make an appointment with my specialist but his secretary told me I’d have to get his approval and give up my already scheduled annual December appointment in order to meet with him on such short notice (we’re talking two weeks out). I think this low-information diet Timothy Ferriss suggested has backfired**… I must have missed a memo. Did the United States already switch to a universal health care system? Are healthcare appointments now rationed?

In an effort to get help asap I have decided to turn to my family doctor for help. I called for an appointment but he was completely booked so I made an appointment 10 days out and started scheming up ways to survive until then.

**In all reality I recommend Timothy Ferriss’ low-information diet. Try it for a week. It has helped with my fibro fog and decreased my stress. I am more productive and less overwhelmed. The diet I created for myself is not as strict as the one he discusses in The 4-hour Workweek but I’ve enjoyed it.

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