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Category: My Health

Fibromyalgia, Mornings, and Pain: Don’t Give In


Recently I’ve realized something I may have already known, but it’s struck me so profoundly I thought I ought to pass it on.

I dread mornings.  I wake up with an upset stomach, a headache, and body that hurts so badly I can barely move.  Every morning.  It is a rare occasion that I stay in bed more than one minute after my alarm sounds.  Now, don’t get me wrong.  I always want to roll over, call in sick, and sleep the day away, because at least when I sleep I don’t hurt.  But the reality is the more quickly I get up and out of bed, the more quickly I feel I can function.

And here’s the point…

How many of us give in to these awful mornings?  How many of us lose resolve after a few of these miserable mornings?  How many of us choose to go back to sleep, just to escape the pain?  Isn’t the reality that such a choice is actually inhibiting our progress toward being well and pain-free?

Too many fibro folks choose to do what seems easy (roll over and go back to sleep), or even wise, and by doing so choose to feel a bit worse each day.  We take a sick day, take it easy, and skip our exercise.  And we create our own version of the reality that so many fibromyalgia and chronic pain stereotypes are based on.  We act lazy, we sleep all day, and we think no one understands.

I am not immune to such follies.  I too give in to my pain, far too often.  But since my trip to Arizona I have rededicated myself to doing what is truly best for my body… getting up, going out, and doing something.

I need to show what I can do.

I need to see myself succeed.

I need to feel my health improve.

And I firmly believe that by doing so, I can create and maintain a cycle of improvement.  I know I will face truly challenging days.  But I pray my future lows will be higher than mast highs.  Improvement is my goal.  May it be a goal we share.

So, please don’t give in the bad days.  And if you are stuck in a cycle of submitting to the mornings you think movement is an impossibility, strive for the little victories.  Set achievable goals, hold yourself accountable (to yourself, a goal, or a loved one), and tell me about your successes.  Please.  We can motivate each other.

Fibro on the Fly 003: Finding Strength Follow-Up 1


Just a quick post to beg your pardon for my delay in posting on what brings me strength.  Fact is, I haven’t been feeling too strong, of late.  (And when I have been feeling strong I’ve also been feeling busy.)  I only made it partially through church today; I had to bail when the whole scene became a bit overwhelming.  You know when you’re sitting in a room filled with people, and it feels like, with each breath they take, they are, in fact, sucking your energy (and sanity) out of your ears and your head is soon to be hollow?  I was there.

And now I’m off to bed.

Fibromyalgia Awareness Day Thoughts


 

 

 

 

Last night I expressed concern relating to Fibromyalgia Awareness Day.  Tonight I will address said concern and share what’s been on my mind of late.

After reading many posts relating to today, I am reassured.  The bulk of pieces I found were uplifting, honest, and educational.  I am consistently impressed by the strength of the chronic pain community, and grateful for my fibrofolk friends.  I am proud to be a part of a community which is proactively taking steps to inform those unaffected by chronic pain and other invisible illnesses about…

Wait.

Of what are we working to inform them?  For what do we wish to raise awareness?

This sounds like a harsh question, but it’s had me doing some serious introspection over the last few weeks.  And I believe, if we can’t answer it selflessly, we have no need for Fibromyalgia Awareness Day.

Do we want someone to feel sorry for us?  Or do we want someone to understand fibromyalgia?

Are we concerned people think we are crazy and/or weak?  Or do we wish they knew fibromyalgia is an explanation, not an excuse?

Can I honestly define the purpose of an awareness day?  Or can I simply determine my interpretation?

Am I completely missing the point?

No.

I am, however, hoping the positive energy I’ve seen on the blogs today sticks with us as we go throughout the rest of the week, month, and year.  I hope we can share it with fibrofolks who are struggling, caught in a flare, or feeling lonely.  And, as I mentioned on Twitter today, I pray we set a high standard and don’t lead others to think fibro is an excuse for, or result of, laziness.

I hope we recognize it is our responsibility to help others understand fibromyalgia; we need to provide (and/or seize) opportunities for education, instead of simply complaining about symptoms.  And, when confronted by someone close to us (or otherwise) who doesn’t “believe” in fibromyalgia, I wish us the ability to calmly say “You’re right.  Fibromyalgia might not exist.  But, it doesn’t matter.  The symptoms do.”

Thank you for your powerful example of strength and honesty.

Come back Thursday for my meaning of today.  And now, whatever your interpretation of the meaning of Fibromyalgia Awareness Day, please share it… along with a link to your post.

Is it just me? Fibromyalgia Awareness Day Doubts


As I prepare for tomorrow’s post and ponder the awareness hype, I keep wondering if we are doing the right thing.  And, to be honest, I’m not convinced we are.

I’m not convinced we are doing the right things, for the right reasons.  In fact, I worry we are missing the point.

I know worrying usually proves worthless.  And I hope this is no different.

No matter what, I thank you for your support and encouragement.  Thank you for helping me feel human.  Thank you for understanding the bizarre things only fibrofolks can.  Thank you for challenging me to push my limits and to recognize when I need assistance.

G’night!  I can’t wait to read what you have to share.

This Time, Last Year or Monday Night Dinner 003


Remember how I was sick back in February?  Well, I still am.  Or I am again.  Or something.

And remember how way back when I wrote about how rarely I get sick?  Well, I think karma’s showing it’s friendly face.  I’ve been sick for three of the four months of 2009.

But remember how last year, at this time I was losing my mind, and most of my sleep, two-timing and loving it, and debating medications and monogamy?  Well, I learned a lot from leaning on others to accelerate my recovery, but I’ll take this over that, any day.  And I mean it.

I can’t remember the last time I had an ear infection.  I can’t remember the last time I had a wicked cold.  I can’t remember the last time a medication (besides my beloved Amitriptyline) did not make me sick.

I can, however, remember I have much to be grateful for.  Including you.  And my bed.  And my job.  And my family.  And weather.  And computers.  And a flash mob that dances to the Sound of Music.

Good night.

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