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Category: Fibromylagia

Great Fibro Blogs (Including Mine?!)


I’m taking a brief break from my Mayo Clinic posts to share a bit of fun news…

You may remember, I was quite excited when Alltop created a page for the top fibromyalgia news.  Well, consider me thrilled.  Recently, a reader brought to my attention the fact that My Life with Fibro has been added to two additional sites as a recommended resource for fibrofolks.

  • Masters in Health Care – 50 Great Blogs for Fibromyalgia Support
    • says folks should read My Life with Fibro “for lessons in how chronic pain can lead to some surprising self-awareness and insight”
    • made me blush with their sweet summary
    • includes many other (49, to be exact) sites you should check out
  • The Daily Reviewer – Top Fibromyalgia Blogs
    • is quite similar to Alltop
    • features links to recent articles from each of the featured blogs

Thank you for your continued support and contributions.  I feel much like I did this night, when I waxed all sentimental.  I am humbled by the compliment paid to me by Masters in Health Care.  As I alluded to here and here, my primary goal when I started My Life with Fibro was to bring folks with fibromyalgia together and encourage them to learn from each other. I hoped to raise morale by raising awareness.

My goals remain unchanged.

What are your goals?  Why do you blog?  Why do you tweet?  If you don’t mind me asking, why do you read My Life with Fibro?   What more could I do for you?

I am compiling a list of questions folks have sent me regarding all things Mayo Clinic.  If you have one to add to the list, leave a comment or, if you’re more comfortable, email me kate at mylifewithfibro dot com.  I will post the answers in the next week or so.

Kate Update: My Life with(out) Fibro?


Since getting treated at Mayo in January, I’ve noticed a dramatic improvement in my health and a nearly-complete cessation of my fibromyalgia symptoms.  Dozens of days have found me, here, staring at my beloved blog wanting to spill my heart.  But I felt like a traitor.  I felt like you’d think I couldn’t relate.  I felt like maybe I shouldn’t stray from discussing My Life with Fibro.  And since my life seemed to be moving on, largely without fibromyalgia, I was left with little to say.

But I’ve come to my senses. Inspired by loved blogs, loved books, and loved ones, I’ve changed my mind.  

And here I am.  

I miss you.  I miss this site.  I miss learning, growing, and fighting fibromyalgia with you.

Since I’ve been gone a few things have changed…

Big Change #1

Big Change #1

Big Change #2

Big Change #2

Look for more updates in the coming days…

Fibro on the Fly 003: Finding Strength Follow-Up 1


Just a quick post to beg your pardon for my delay in posting on what brings me strength.  Fact is, I haven’t been feeling too strong, of late.  (And when I have been feeling strong I’ve also been feeling busy.)  I only made it partially through church today; I had to bail when the whole scene became a bit overwhelming.  You know when you’re sitting in a room filled with people, and it feels like, with each breath they take, they are, in fact, sucking your energy (and sanity) out of your ears and your head is soon to be hollow?  I was there.

And now I’m off to bed.

Fibromyalgia Awareness Day Thoughts


 

 

 

 

Last night I expressed concern relating to Fibromyalgia Awareness Day.  Tonight I will address said concern and share what’s been on my mind of late.

After reading many posts relating to today, I am reassured.  The bulk of pieces I found were uplifting, honest, and educational.  I am consistently impressed by the strength of the chronic pain community, and grateful for my fibrofolk friends.  I am proud to be a part of a community which is proactively taking steps to inform those unaffected by chronic pain and other invisible illnesses about…

Wait.

Of what are we working to inform them?  For what do we wish to raise awareness?

This sounds like a harsh question, but it’s had me doing some serious introspection over the last few weeks.  And I believe, if we can’t answer it selflessly, we have no need for Fibromyalgia Awareness Day.

Do we want someone to feel sorry for us?  Or do we want someone to understand fibromyalgia?

Are we concerned people think we are crazy and/or weak?  Or do we wish they knew fibromyalgia is an explanation, not an excuse?

Can I honestly define the purpose of an awareness day?  Or can I simply determine my interpretation?

Am I completely missing the point?

No.

I am, however, hoping the positive energy I’ve seen on the blogs today sticks with us as we go throughout the rest of the week, month, and year.  I hope we can share it with fibrofolks who are struggling, caught in a flare, or feeling lonely.  And, as I mentioned on Twitter today, I pray we set a high standard and don’t lead others to think fibro is an excuse for, or result of, laziness.

I hope we recognize it is our responsibility to help others understand fibromyalgia; we need to provide (and/or seize) opportunities for education, instead of simply complaining about symptoms.  And, when confronted by someone close to us (or otherwise) who doesn’t “believe” in fibromyalgia, I wish us the ability to calmly say “You’re right.  Fibromyalgia might not exist.  But, it doesn’t matter.  The symptoms do.”

Thank you for your powerful example of strength and honesty.

Come back Thursday for my meaning of today.  And now, whatever your interpretation of the meaning of Fibromyalgia Awareness Day, please share it… along with a link to your post.

Is it just me? Fibromyalgia Awareness Day Doubts


As I prepare for tomorrow’s post and ponder the awareness hype, I keep wondering if we are doing the right thing.  And, to be honest, I’m not convinced we are.

I’m not convinced we are doing the right things, for the right reasons.  In fact, I worry we are missing the point.

I know worrying usually proves worthless.  And I hope this is no different.

No matter what, I thank you for your support and encouragement.  Thank you for helping me feel human.  Thank you for understanding the bizarre things only fibrofolks can.  Thank you for challenging me to push my limits and to recognize when I need assistance.

G’night!  I can’t wait to read what you have to share.

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