Comments on: Please Help! Fibromyalgia and My Breaking Point

By: Lelia

Lelia — Wed, 23 Jun 2010 03:21:19 +0000

I have had the pain in my spine a few times when I first learned I had this condition…There is really nothing that I can do to make it better..not lying down not standing up and surely not sitting…It does get to the breaking point when you feel like you just can’t make it anymore and that it will never go away. I would try different things to try to relieve the pain like a hot shower or pain pills, but it is not untill I am able to sleep that it seems like the pain eases up. I have tried the cymbalta and it does work for me but I always seem to stop when I start feeling better thinking that everything is ok…don’t let your mind fool you body or your body fool your mind. You have to gain control of this disease or it will gain control over you. I found that the less stress you are in the less often flare ups occur. I’m not sure if this helps any, but dont feel bad..we are all going thru this togehter…this pain is a pain in the butt…every flare up is not like the last..sometimes it is worse than the last..try this…when you feel like you’re going to loose it, escape to a quiet place, turn off your cellphone and just relax..think of nothing other than getting control over your body. Your mind is stronger than you think. If your mind is telling your body to relax, your boday will relax. I hate doctors, because they always think that my pain is in my head and they try to dope me up on tons of different meds.. I even once been told that I was under alot of stress and need to see a shrink! Just try the peaceful settings at the end of your work week before you get home, let work go so that you can deal with home. It works for me I hope it works for you.

By: sunny

sunny — Sat, 16 Jan 2010 17:28:35 +0000

I too have fibro and have been suffering since 1985. I have just recently begun to have severe pain in my upper spine. Thanks to your blog I now know it is just another part of the same ole fibro. Thank you so much for the info, i was really scared since i had fallen and was afraid i had really injured myself. I have really enjoyed your blog. It is the frst one I have read and never written in one. Thank you again and i will keep up with you. Love and tender hugs, Sunny

By: kt

kt — Wed, 28 Oct 2009 00:42:00 +0000

Hey..I have fibromyalgia as well. I too am in constant pain and if I am not careful it can invade every thought every day. However, I try to remember that there are ALOT of people in this world who are so much worse off physically than “us”. Our condition is nothing compared to so many who are starving, paraplegic (we can get out of bed if we really want to) blind, deaf, without arms and/or legs, dying of cancer (insert deadly disease here) etc., etc. I know that some days I just get so darn tired of being in pain, but then I remember…I am really not that bad off.

By: Cathy

Cathy — Tue, 25 Aug 2009 19:49:29 +0000

I feel your fibro pain everyday. The exact spot in my back has had me crying for several days. So, today I went to a pain specialist–he gave me a trigger point injection to the right of my mid spine. That’s what is causing your pain in that area! I felt immediate relief after he finished. He told me to use the TENS unit every day–2 hours on. Check into this. Good luck & God bless!!

By: Jennifer

Jennifer — Tue, 25 Aug 2009 15:01:05 +0000

If I hear one more time, “Are you sure you don’t have Lyme Disease?” If only it was that simple. The countless and often useless doctor visits are the worst. I got to the point where I did the reverse. Not going to the doctor no matter what was wrong because I was so tired of it. Got severely ill with Pneumonia as a result. Fever and chills happen all the time. How can I tell the difference?

I have tried a new routine that has reduced the number of “episodes”. I found a physical activity (volleyball) that I really enjoy so I am encouraged to do it often. On a Fibro day (or days) I have strong pain killers so that I still go to volleyball. I only take a tranquilizer for the really bad nights. I also take 5htp everyday. I have gone from problem every other month to only once every four months. The regular physical exercise and sleep are the number one relief options for us. We just have to trick our bodies so those things happen.

By: Barbara

Barbara — Mon, 24 Aug 2009 22:37:32 +0000

Kate,
I appreciate your story. Much of it was so familiar because I too had fibromyalgia for many years. I finally found a way to get rid of it. I still have SOME aches etc, but NOTHIING like I used to have. Fibromyalgia is such a terrible disease!! It effects every aspect of your life. When I look back at those years I can’t imagine how I went on. So much of the time I didn’t want to keep going on!! I imagine you know what I mean by that since you have fibromyalgia too. Only a person with fibromyalgia can understand what it is truly like!!!
My heart goes out to you and I feel your pain.

By: Jim Clements

Jim Clements — Tue, 07 Jul 2009 06:23:18 +0000

K8, In your blog posting I came across the word “remiss” And I’m thinking, “Who uses that word in normal conversation? She has got to be LDS, that’s a “testimony meeting” word. Then saw your wedding photo and that clinched it. The Mesa Temple is special to me too. Hope that you are feeling well.
All the best,
Jim

By: K8

K8 — Fri, 26 Jun 2009 00:57:22 +0000

Tami: Thank you for suggesting physical therapy. I will look into it.

Jenn: I am glad you found me and I’ve added your blog to my reader. Welcome to the online fibrofolks community!

Teia: Hooray! Another blog to read and another powerful example of strength. Thank you for your support.

Benia: Thank you for being the voice of reality. Last night I followed your advice and took some time to listen to music and relax. My husband was grateful to see me being me.

By: Benia

Benia — Wed, 24 Jun 2009 21:22:38 +0000

I want to remind you that you are definitely allowed to vent…and breathe. That means, try to make time to relax.

I worry that you are planning to take too much action for the week already, especially considering that the procedures you will go through may set you back. Enjoy what you can, whether it’s quiet time outside or getting lost in music or mindless television. Try to have a day where you don’t have to worry about appointments or chores and just BE for a while.

When I feel terrible, I try to remember that better days are ahead of me, so I can look forward to something positive when I need it most. I hope this is helpful to you. Take care…

By: Teia Hassey

Teia Hassey — Tue, 23 Jun 2009 23:53:51 +0000

((Hugs))

My back and neck are with lots of knife stabbing pains. I have been through every therapy possible. One of my spinal doctors gave me “Lidoderm” patches. It is a Rx but well worth it. On my bad days I put one on my neck and one on my lower back.
Please read my blog, you are not the only one, and I am trying to find a better way of life too. ((hugs))

Cheers!