Archive for January, 2009

Fibromyalgia, Arthritis, More Frigid Weather, and a Lot of Ice

If you live in the United States you’ve likely heard about, or expe­ri­enced first-hand, the recent ice storm.  And, if you’re like me you felt it com­ing.
Sun­day I woke up to a feel­ing I had, appar­ently, blocked from my mem­ory.  Arthri­tis pain.  I think it’s like a teter tot­ter… Well, I think my recog­ni­tion of […]


Fibromyalgia Works for Me: Recognizing My Limit

Fibromyal­gia does not rob me of my life, it does not ruin my life, it does not run my life. Fibromyal­gia does, how­ever, affect my life, focus my life, even enrich my life Fibromyal­gia has chal­lenged me to make do with what I’ve got (as far as endurance goes).


My Life with Fibro is Growing: For FibroYouth™

My fight with fibromyal­gia began in my tween years; how­ever, I offi­cially became a fibroy­outh™ at 14. My sur­vival and suc­cess in high school and col­lege can be attrib­uted to the team of resource­ful sup­port­ers I recruited over the years.
Fam­ily mem­bers and friends came together to help me learn about, and min­i­mize the symp­toms of, fibromyalgia. […]


Please Help! Chronic Illness and Meeting People, Part 2

I’m so torn.  For me the answer is as fol­lows:
It depends on my mood.  And how a per­son makes me feel.  And where I am.  But mostly I don’t tell them unless I have to.  In fact, since my diag­no­sis in 1998 (at age 14), I have lived in (minus my 10 semes­ters at college) […]


Please Help! Chronic Illness and Meeting People

Over the week­end I received an impor­tant e-mail from a chronic fatigue folk out in Cal­i­for­nia.  He brought up a com­mon dilemma and I can think of no group more expe­ri­enced (trans­lated: pre­pared) to dis­cuss such an issue than y’all.
To be hon­est, I am not con­vinced my answer to this ques­tion is the best, so I […]