Comments on: Fibromyalgia, Gauging Pain, and Self Doubt

By: Tricia

Tricia — Thu, 27 Aug 2009 16:37:15 +0000

I doubted myself many times throughout the years. Doctor’s didn’t believe me, my family didn’t believe me, neither did friends. I would always come back to deceiding that – no, a normal person does not feel this way and that I didn’t always feel this way.

Good luck!

By: My Life with Fibro | Fibromyalgia, Gauging Pain, and Self Doubt (revisited and revised, in part)

Thu, 28 May 2009 04:38:11 +0000

[...] Before you read this post, I recommend you go here. [...]

By: Raven

Raven — Thu, 26 Feb 2009 22:20:52 +0000

Funny, but I’m dealing with that today. Hence, I’m on your website instead of working, lol. Some days I just want to cry uncle.

By: My Life with Fibro | Please Help! Chronic Illness and Meeting People, Part 2

Wed, 21 Jan 2009 04:57:06 +0000

[...] I think this is the biggest struggle for me and my fibromyalgia… as I discussed here and therefore fall short of our purpose.. And, to be honest, I think it’s a healthy and [...]

By: Valerie Thompson

Valerie Thompson — Sat, 10 Jan 2009 06:34:11 +0000

I have been dealing with chronic pain, fatigue and a host of other health issues for a while now. I too am glad found this. I am going through the proccess of getting tests and diagnosis to find out what I have – it may be FM or something similar.

Your article hits home with the point about guilt. I always remember myself as pretty pain tolerant, clumsy but tolerant. But I too struggle with I’m sure others would easily go to work everyday. But really would they? I have to tell myself that sometimes its not the occasional headache that you don’t grunt through and work. It’s the fact you feel horrible 75-90% of your life. It wears you down.

By: happdai

happdai — Fri, 18 Jul 2008 17:27:45 +0000

Hi, Im sorry, I am actually the person who posted both those messages. HA! I dont know what I did, and I thought it didnt take so I started over and changed my name too. So, its just me!

Thanks for the reply. I plan on reading thru your previous posts. Just curious, how old are you? From your picture you look so young. Its a shame we suffer from this at such a young age. I am 31, I was 29 when I had my accident. It really makes you think. I skated thru life without a care in the world, and now there is so much stress in my life, everything had come to a head all at once. My husband had spinal fusion surgery in December, and he is still recovering. He hasnt been able to work. We are in debt up to our ears, and we are afraid we are going to lose our house. This doesnt help my pain level, and I would be willing to bet that the last few months has contributed to the onset of fibro.
Thanks for providing a place for people like me to come and vent and cry and feel like we belong.

By: K8

K8 — Fri, 18 Jul 2008 03:20:56 +0000

Mariska: Hello! I am glad you found my place and that you said hello.

HappyDai: That accident sounds like a terrible way for a new year to start. Fibromyalgia is, indeed, frustrating (to say the least). You can look through some of my previous posts to see I sometimes struggle with feeling overwhelmed, misunderstood, isolated, and such. Over the last 10 years my team, family, close friends, and a few good doctors have changed my life. Although we haven’t been able to make the pain all go away, we have been able to create a support structure I can rely on and find stability in. (And I have even seem some unexpected blessings come from my fight with fibro.) Welcome to my team!

Please let me know if there is anything I can do to help either of you.

By: happydai

happydai — Fri, 18 Jul 2008 03:01:15 +0000

Hello K8!
Im so glad I found your website. I have been dealing with chronic pain since 1-1-06. It all started with a car accident. A kid pulled out in front of me as I was going 50 mph. I T-boned him. Air bag deployed, but I stiffened befored I hit him. Horrific pain in my neck, back, shoulders, head, etc ever since. Lately the pain is ‘traveling’ I have trigger points all over my body. Legs, arms, hips, etc. Rheumatologist diagnosed me with Fibro. I cant accept it. I am glad this darn pain has a ‘name’ now, but I dont know why this has happened to me? Why? Why did that kid pull out? Why am I suffering like this, and quite possibly for the rest of my life?
I am sorry, I didnt mean to go on and on, I just feel like nobody understands. I talked with my husband about it tonight that I feel SO isolated and lonely. Do you ever feel like that? I dont know what to do with myself sometimes, when I am overcome with pain and the activities I enjoyed seem so out of reach.
Anyways, the rheum put me on some new meds so I am hoping that will help.
Thanks, and I am adding you as a favorite

By: mariska

mariska — Fri, 18 Jul 2008 02:52:23 +0000

Hello K8