http://mylifewithfibro.com/Blog/2008/05/15/a-fibrofolk-in-need/ An online haven for people with fibromyalgia. We bring fibrofolks together and encourage members to learn from each other as the My Life with Fibro community strives to raise awareness and raise morale. Thu, 26 Jan 2012 17:23:30 +0000 hourly 1 http://mylifewithfibro.com/Blog/2008/05/15/a-fibrofolk-in-need/#comment-27 Corkee Sat, 06 Sep 2008 04:31:10 +0000 http://mylifewithfibro.com/Blog/?p=52#comment-27 I found you on Twitter and just had time to really read through your blogs. So many "ah ha" moments..."oh, that fog I feel is real?" "So someone else besides my doctor believes this is a disease?"...oh, so many...planning and not knowing if you will be able to carry out those plans the next day. And, most of all, the statement you so boldly claim - that there is something to be thankful for. For me, I am thankful for now that it isn't worse (today anyway). I can get up out of bed and feel my body signals that are calling out to me (sometimes yelling out to me and occasionally slipping right out of my mouth saying some cuss word that only my dog hears, thankfully). I can flip my long brunette hair back and face the day (Okay, that long brunette thing came from Sara Jessica Parker's Loreal hair color ads..and my dreams...not my morning reality, I confess). The thing is, like you said in one post..we ARE living. And it's our responsibility to our family, friends and most of all ourselves to live honestly. You are doing that. Thank you so much for sharing your story :) I found you on Twitter and just had time to really read through your blogs. So many “ah ha” moments…”oh, that fog I feel is real?” “So someone else besides my doctor believes this is a disease?”…oh, so many…planning and not knowing if you will be able to carry out those plans the next day. And, most of all, the statement you so boldly claim – that there is something to be thankful for. For me, I am thankful for now that it isn’t worse (today anyway). I can get up out of bed and feel my body signals that are calling out to me (sometimes yelling out to me and occasionally slipping right out of my mouth saying some cuss word that only my dog hears, thankfully). I can flip my long brunette hair back and face the day (Okay, that long brunette thing came from Sara Jessica Parker’s Loreal hair color ads..and my dreams…not my morning reality, I confess). The thing is, like you said in one post..we ARE living. And it’s our responsibility to our family, friends and most of all ourselves to live honestly. You are doing that. Thank you so much for sharing your story

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