Kate's picture
I'm Kate

    I have Fibromyalgia, POTS, Osteoarthritis, IBS, CFS, and SVT.

    I am humbled by, and grateful for the lessons I learn through, my invisible illnesses.

Kate does Crossfit: Day 100

11/17/2013

I never want to be one of those people… You know, the annoying folks who never shut up about what they’re into?

Having said that, if I feel strongly enough about something, I don’t typically care how I come off.

So, here goes… a rather indelicate attempt to walk a fine line.

 

Exactly 100 days ago my husband and I completed the fifth and final step of on-ramping at our local CrossFit box.  Although, in truth, that first full WOD was just the beginning.

To clarify: WOD is an acronym for “workout of the day.”

As I’ve mentioned in previous posts (1234, and 5), I was a gymnast growing up.  So, if you know much about gymnastics (or CrossFit), you’ll know CrossFit is a pretty logical workout regimen for someone with my background.  It’s challenging, it’s scalable, and it’s straightforward.  And, while the community is remarkabley tight-knit and there are team events in the Games, CrossFit is a very individual sport.  Which, frankly, makes it even more my kind of thing.  Team sports have never been my style.  

The idea of a large group of people counting on me, and the possibility I may let them down?  Pass.

It’s late, and I’m fighting a headache, so I’ll call it a night… but, I’ll keep at the CrossFit and be back over the coming weeks to discuss the following:

  • How did we get into it?
  • How is my health holding up?
  • What is a typical workout like?
  • How frequently do I workout?
  • What does it cost?

 

I look forward to sharing this new bit of mylifewithfibro with you.  Let me know if you have any specific questions, and I’ll be sure to address them.

Until then, stay well.  Have a wonderful week.  And don’t let a fall flare get the best of you.

20121214-110609.jpg

On the Fly: Mayo Clinic Trip Number Four, Winding Down

12/14/2012

I’m in DFW, waiting for my flight home. This whirlwind trip to the Arizona Mayo Clinic will last a total of about 48 hours, and this is hour 46. In 90 minutes I’ll be home. In 120 minutes I’ll be picking my car up from the dealer. And in 180 minutes I’ll be at work.

I think.
There are many updates I will share, but for now I will just say…

It was all good news.

Fred Flare Nut Case

Pill Popping and Shopping… Round 3

11/26/2012

Just a quick find I thought I’d share with my fellow fibrofolks, spoonies, and POTSies as we head into the Christmas season.  Fred Flare is my favorite place to find oddball, quirky stuff that makes me smile, and, for $14, this Nut Case Key Ring Pill Case is no exception. 

Although it’s got more personality than the options I discussed in my Pill Popping and Shopping post, it’s not terribly dissimilar from amy first choice.  Similar in the right ways, but with a superior closure.  A threaded lid instead of a slider means more embarrassing spills of tiny white pills in public places and at inopportune times.

I’ve been quite happy with my more-recent upgrade, but I think I can justify this purchase.  While my current setup is perfect for travel, it sometimes feels tedious (and often goes unused) during a typical work week.  I’m thinking this is the perfect, daily solution.

How do you manage your daily meds?

uncertrainty is glorious

1 Way My Life with Fibro Tempers Me: Uncertainty

08/26/2012

When I woke up this morning my mind seemed to already be thinking about how living with constant health issues, small or significant or quite painful, has defined / refined / smoothed / taught / humbled / made me.  While the ways seem endless, above all, my health  issues have truly tempered me and my tendencies.  So, since I know you know what I mean, I’ll be sharing some as they come to mind.

 

Lately I’ve thought a lot about all the time I spend in some state of uncertainty.

You know the drill.

  • “Am I getting sick, or is this a flare?”
  • “Is this IBS or an allergy or food poisoning?”
  • “Am I not getting good sleep, or is this my CFS?”
  • “When will my POTS correct itself?”
  • “Will I always feel like this?”
  • “What made today a good day?”
  • “Did I over do it?”

Although my family faced bouts of uncertainty while I was growing up, I remember vividly the first time I faced it as an adult.  At least the first time I faced an uncertainty of true weight…

Daniel graduated in August of 2006 and continued to work full time at a residential treatment center until I graduated the next April.  As we neared time for my graduation, I began interviewing for positions around the country.  We knew he wanted to attend graduate school, but we also knew we’d have to decide how to respond to my job offers long before we’d know the status of his grad school applications.
I remember many nights heading to bed in our basement apartment with my mind racing through scenarios, everyone ending with me acknowledging it was all a bit bigger than my tired mind could tidy before I fell asleep, or gave up on sleep and headed to classes.

Then, something changed.  I don’t remember who got me there, but I remember one evening, as we closed the day with a prayer, I realized I had to give it to God.   I couldn’t see the big picture, and make sure the events fell into place just so, but I could do my best in school, rock my interviews, support Daniel in his application process, and then put my faith in Heavenly Father to make it enough.  To sort it all out and give us a hint.  Or, in our case, a very strong suggestion from someone dear to us (because it never seems to be just a hint in our marriage).

So, I did.

And then, I got to work making life happen. In the best way possible.

"The willingness to consider possibility requires a tolerance of uncertainty." Rachel Naomi Remen

Source: Hollye Jacobs of The Silver Pen

 

It wasn’t long before truly amazing things happened (much thanks to inspired friends and family who spoke up) to land us here, in Arkansas, house sitting for a remarkable family for three years, with two challenging and stable jobs, a new car, and the perfect bilingual graduate program for Daniel.

It’s now been over five years since we moved to Arkansas. And in those five years, we’ve seen tremendous blessings come into our life, faced issues we did not expect, met people we will love forever, and had many opportunities to remember that…

uncertrainty is glorious

 

Uncertainty really can be glorious.  Especially if you let it work for you.

While it tries our heart and stretches our soul, I believe it refines us. It reminds us to be happy with a good day, today. To be and do our best, always. To keep track of, and give thanks for, small wins. To have patience with ourselves… as we wait for a good day, and in all things.

Luckily for me, the most significant bits of my life are certain.  I have security in all the things I truly need, I’m just still really learning that last one. I assume I will always be… But, for now, I am proud to see the patience with which I try to face days in the frustrating middle ground, feeling better than awful and worse than great.  My patience truly is ever-increasing.

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