Is it just me? Fibromyalgia Awareness Day Doubts

As I prepare for tomorrow’s post and ponder the awareness hype, I keep wondering if we are doing the right thing.  And, to be honest, I’m not convinced we are.

I’m not convinced we are doing the right things, for the right reasons.  In fact, I worry we are missing the point.

I know worrying usually proves worthless.  And I hope this is no different.

No matter what, I thank you for your support and encouragement.  Thank you for helping me feel human.  Thank you for understanding the bizarre things only fibrofolks can.  Thank you for challenging me to push my limits and to recognize when I need assistance.

G’night!  I can’t wait to read what you have to share.

3 Responses

  • Benia on May 12, 2009, 14:55:48

    Can you elaborate on your doubts? I think I know what you’re saying. Sometimes those tidbits that get public attention are misunderstood, as with some of those Lyrica ads, or many of the news stories that focus on only the parts that will get ratings. I am doing what I can to help the people who know me understand that I have this crazy disease, but they rarely see the symptoms I deal with. They only know me at my best or at least on okay days.

    I am grateful to be able to see through this obstacle that there are people out there who mustn’t be lumped in with the masses who seem to want to misunderstand at every turn. Thank you for addressing issues like this.

    Reply to Benia
  • K8 on May 12, 2009, 21:47:39

    I totally agree… what gets public attention usually makes us sound like we’re all the same or we’re all crazy women with no pain tolerance. And as a 24 year old who was diagnosed over a decade ago, I sure don’t feel like that’s the case.

    I am grateful there are fibrofolks like you out there sharing the truth about fibromyalgia. I know it is tough to explain fibro to someone who never sees you when you’re down. Especially people who look up to you, or thought they knew you. I think it’s difficult for them to understand that side of us. As, I’d imagine, it is with for outsiders to understand any disease or subculture.

    Reply to K8